目的：全面了解重症肌无力患者症状经历及心理感受。方法：采用现象学研究法，对17例重症肌无 力患者进行半结构式访谈，运用Colaizzi 7步分析法对访谈资料进行分析。 结果：归纳出3个主题，疾病相 关症状：眼部症状、面部症状、球麻痹症状、颈部和四肢症状、呼吸症状；治疗相关症状；负性情绪经历：复发 或加重的恐惧、病耻感、睡眠障碍、心理状态改变、灾难化解释。结论：重症肌无力患者存在多种症状困扰， 承受着巨大的症状负担。

To gain a comprehensive understanding of the symptoms and psychological feelings experienced by patients with myasthenia gravis. Methods: Semi-structured interviews were performed by phenomenology in 17 patients with myasthenia gravis. Data was analyzed by Colaizzi’s 7-step analysis method. Results: Three themes were extracted, including disease-related symptoms (eye symptoms, facial symptoms, bulbar palsy symptoms, neck and limb symptoms, and respiratory symptoms), treatment-related symptoms, and negative emotion experience (recurrence or aggravation of fear, stigma, sleep disturbance, mental state change, and catastrophic explanation). Conclusion: Patients with myasthenia gravis suffer a wide variety and huge burden of symptoms.